【摘要】：研究目的參照患者報告結局指標(patient reported outcomes,PRO)量表研制的程序,結合我國獨特的文化以及對視障兒童的認知和臨床特點,制定出適合我國視障兒童的生命質(zhì)量測定量表,采用現(xiàn)場調(diào)查方法收集樣本,修訂并考核該量表的信效度和區(qū)分度。該量表將用于評價視障兒童的生命質(zhì)量,為全面的了解視障兒童健康狀況以及社會參與能力提供測量工具。研究方法1、根據(jù)PRO量表制作原理及PRO的程序,運用文獻研究法、核心小組討論法,構建視障兒童生命質(zhì)量量表的共性模塊和特異性模塊,形成條目池。2、運用德爾菲專家咨詢法,收集專家意見,建立數(shù)據(jù)庫,考察專家的積極程度、意見集中程度、協(xié)調(diào)一致程度和權威程度,反復進行兩輪,形成視障兒童生命質(zhì)量測定初選量表。3、采用視障兒生命質(zhì)量測定初選量表進行現(xiàn)場調(diào)查,對回收的數(shù)據(jù)使用相關系數(shù)法、因子分析法、項目反應理論進行分析,測量量表的信效度和區(qū)分度,得出最終量表。研究結果1、視障兒童生命質(zhì)量測定量表包含6個領域41個條目,根據(jù)不同年齡階段視障兒童認知水平、理解能力的不同,在量表測量領域及條目結構不變的基礎上,將該量表分為了7歲以下組和8歲以上組,同時設計了在特殊情況下家長代評問卷。2、兩輪專家權威程度系數(shù)的平均值分別為0.700、0.745;第二輪專家咨詢重要性和準確性的協(xié)調(diào)系數(shù)分別為0.206、0.270;同時采用界值法對條目進行篩選。3、信度評價:總量表的克朗巴赫α系數(shù)為0.868,各個領域克朗巴赫α系數(shù)在0.527~0.777之間;總量表的分半信度為0.765,各個領域分半信度在0.451~0.660之間;總量表重測信度為0.808,各個領域的重測信度在0.760~0.894之間。4、效度評價:維度相關性方面,各條目與其所在領域的相關性較高,但與其他領域的相關性較低,量表各領域與總量表之間的相關系數(shù)均大于0.5,各條目與其所在領域的相關系數(shù)多數(shù)在0.6以上。因子分析結果顯示,提取13個公因子,累計方差貢獻率為66.157%,方差最大旋轉(zhuǎn)后結果顯示與理論框架基本相符。驗證性因子分析結果顯示,總量表的CFI為0.71,各個領域的CFI分別為0.95、0.97、0.92、0.92、0.87、0.80。5、區(qū)分度評價:量表各條目ICC曲線構圖良好,條目信息包含量大,誤差小。6、可行性評價:每份量表的完成時間均可以控制在15~20分鐘,可行性較高。研究結論視障兒童生命質(zhì)量測定量表具有較高的信度、效度、區(qū)分度及可行性,可以作為視障兒童生命質(zhì)量測評的工具,評價視障兒童康復效果極其社會參與能力。
[Abstract]:Objective to develop the quality of life (QOL) measurement scale for visually impaired children according to the procedure of the development of the patient report outcome index (patient reported outcomes,PRO) scale, combined with the unique culture and the cognitive and clinical characteristics of the children with visual impairment in China. The reliability, validity and distinction of the scale were revised and evaluated by field survey. The scale will be used to evaluate the quality of life of children with visual impairment and to provide a comprehensive understanding of the health status of children with visual impairment and the ability to participate in society. Methods 1.According to the principle of PRO scale and the procedure of PRO, using the method of literature research and core group discussion, the common and specific modules of quality of life scale for children with visual impairment were constructed, and the item pool was formed. 2. Using Delphi's expert consultation method, collecting expert opinions, setting up databases, examining experts' positivity, concentration, coordination and authority, and carrying out two rounds over and over again. The primary quality of life measurement scale for visually impaired children was formed. 3. The primary quality of life measurement scale for visually impaired children was used to conduct field investigation. The data collected were analyzed by correlation coefficient method, factor analysis method and item response theory. The reliability and validity of the scale were measured and the final scale was obtained. Results 1. The quality of life measurement scale for visually impaired children includes 41 items in 6 fields. According to the cognitive level and understanding ability of children with visual impairment at different ages, the measurement field and item structure of the scale are unchanged. The scale was divided into 7 years old group and 8 years old group. At the same time, the parents' substitute questionnaire was designed under special circumstances. 2. The average value of the two rounds of expert authority coefficient was 0.700 鹵0.745; The coordination coefficient of the importance and accuracy of the second round of expert consultation is 0.206 and 0.270 respectively; At the same time, the method of boundary value was used to screen the items. 3. Reliability evaluation: the total amount of the krombach 偽 coefficient was 0.868, and the cornbach 偽 coefficient in all fields was between 0.527 and 0.777; The split-half reliability of total table is 0.765.The split-half reliability of each field is between 0.451and 0.660; The test-retest reliability of total table is 0.808, the retest reliability of each field is between 0.760,0.894. 4. Validity evaluation: in dimensional correlation, each item has a higher correlation with its domain, but a lower correlation with other fields. The correlation coefficient between each field and total scale is more than 0.5, and the correlation coefficient between each item and its field is more than 0.6. The results of factor analysis show that 13 common factors are extracted and the cumulative contribution rate of variance is 66.157. The results of maximum rotation of variance are basically consistent with the theoretical framework. The results of confirmatory factor analysis showed that the CFI of the total table was 0.71, and the CFI of each field was 0.95 / 0.970.92 / 0.920.87 / 0.80.The degree of discrimination was as follows: the ICC curve of each item of the scale was well composed and the amount of item information was large. The error is small. 6, feasibility evaluation: the completion time of each scale can be controlled in 1520 minutes, and the feasibility is high. Conclusion the quality of life measurement scale for children with visual impairment has high reliability, validity, distinction and feasibility. It can be used as a tool to evaluate the quality of life of children with visual impairment, and to evaluate the rehabilitation effect of children with visual impairment and their ability to participate in society.
【學位授予單位】：山西醫(yī)科大學
【學位級別】：碩士
【學位授予年份】：2016
【分類號】：R779.7

【相似文獻】

相關期刊論文 前10條

1 萬崇華;常用生命質(zhì)量測定量表簡介[J];中國行為醫(yī)學科學;2000年01期

2 萬崇華;孟瓊;羅家洪;湯學良;張燦珍;盧玉波;楊錚;張曉磬;;癌癥患者生命質(zhì)量測定量表體系共性模塊的研制(一):條目篩選及共性模塊的形成[J];癌癥;2007年02期

3 楊錚,劉曉鵬,萬崇華,李曉梅,楊玉萍;慢性呼吸系統(tǒng)疾病生命質(zhì)量測定量表研究概況[J];中華結核和呼吸雜志;2005年11期

4 楊錚;李曉梅;萬崇華;楊玉萍;王國輝;趙芝煥;張曉磬;;慢性阻塞性肺疾病患者生命質(zhì)量測定量表的研制與考評[J];中國全科醫(yī)學;2007年13期

5 王增珍,周有尚;生命質(zhì)量測定方法及其應用[J];國外醫(yī)學(社會醫(yī)學分冊);1990年01期

6 馬瑞珩;付立;馬興濤;李麗;葉志霞;;生命質(zhì)量測定量表及其特異性模塊的研究現(xiàn)狀[J];解放軍護理雜志;2008年19期

7 萬崇華,張燦珍,宋元龍;肺癌患者生命質(zhì)量測定研究概況[J];中國腫瘤;2001年02期

8 魏朝暉,莫一心;生命質(zhì)量測定量表SF-36的應用[J];國外醫(yī)學(社會醫(yī)學分冊);1997年04期

9 萬崇華;孟瓊;楊錚;湯學良;張燦珍;盧玉波;羅家洪;張曉磬;;癌癥患者生命質(zhì)量測定量表體系共性模塊的研制 (二):信度與效度分析[J];癌癥;2007年03期

10 孟瓊,萬崇華,羅家洪;癌癥患者生命質(zhì)量測定量表EORT CQLQ-C30的應用[J];中國行為醫(yī)學科學;2005年03期

相關會議論文 前1條

1 雷玉晶;王洪冰;李寧;張坤;鄧飛;;成人阻塞性睡眠呼吸暫停低通氣綜合征患者生命質(zhì)量測定及其影響因素的探討[A];中華醫(yī)學會呼吸病學年會——2011（第十二次全國呼吸病學學術會議）論文匯編[C];2011年

相關博士學位論文 前1條

1 潘海燕;現(xiàn)代測量理論在慢性病患者生命質(zhì)量測定量表體系共性模塊研制中的應用[D];南方醫(yī)科大學;2011年

相關碩士學位論文 前5條

1 胡貝貝;視障兒童生命質(zhì)量測定量表的研制與評價[D];山西醫(yī)科大學;2016年

2 王國輝;慢性肺源性心臟病患者生命質(zhì)量測定量表的研制與考評[D];昆明醫(yī)學院;2007年

3 楊瑞雪;心血管疾病患者生命質(zhì)量測定量表的研制與考評[D];昆明醫(yī)學院;2005年

4 葉明明;乳腺癌化療患者生命質(zhì)量測定量表QLICP-BR的考評[D];安徽醫(yī)科大學;2009年

5 孟瓊;胃癌患者生命質(zhì)量測定量表的研制[D];昆明醫(yī)學院;2005年

，

本文編號：2355494