本文選題：腦性癱瘓 + 家庭康復　； 參考：《南昌大學》2017年碩士論文

【摘要】：目的:探究腦癱患兒家長對家庭康復微信平臺指導的需求特點及其影響因素,為構建具有康復指導功能的微信公眾號提供理論依據(jù),借助微信公眾號為患兒家長提供具有針對性的家庭康復指導內(nèi)容,并探究微信公眾號的應用實效及其對家長的影響。方法:本研究將量性研究和質性研究相結合,分三個階段進行。第一階段,采用質性研究通過半結構式訪談醫(yī)院就診的腦癱患兒家長,并在此基礎上通過專家函詢法編制康復指導需求問卷,采用目的抽樣選取121名患兒家長進行問卷調查。第二階段,以前期需求調查結果為框架,以腦癱患兒康復指南、相關書籍及醫(yī)院醫(yī)護人員指導意見為依據(jù),申請微信公眾號并確定康復指導內(nèi)容。借助醫(yī)院平臺進行微信公眾號推廣,通過微信群聊與家長互動了解其動態(tài)需求。第三階段,公眾號運行3個月后,在查閱文獻及專家函詢的基礎上編制患兒家長公眾號使用現(xiàn)況調查表,借助微信公眾號向關注用戶發(fā)送問卷,以自愿填寫的家長為研究對象進行公眾號使用效果測評。結果:第一階段研究結果顯示,腦癱患兒家長微信使用率為95.54%,有32.14%的家長關注過相關康復微信公眾號,并且有94.64%的家長表示愿意關注患兒家庭康復指導微信公眾號,其對康復指導公眾號的需求得分為(31.80±7.60)分并且受文化程度的影響。家長每天瀏覽微信公眾號的頻率為(2.57±1.60)次,且閱讀時間主要集中在臨睡前。家長的康復需求以推拿按摩手法指導、行走(站立)訓練、醫(yī)護在線交流、日常飲食指導和言語訓練指導為主。第二階段的微信公眾號運行現(xiàn)狀:已有來自全國25個省份的190名患兒家長關注本微信公眾號,其中以江西省用戶最多為138名。公眾號運行3個月共推送28條圖文消息,共有1361人點擊3586次。879人點擊微信公眾號菜單1001次,人均點擊次數(shù)為1.14次,點擊量較多的子級菜單依次為微信群聊、推拿按摩指導、生活能力測評、行走(站立)訓練、語言訓練。第三階段調查結果顯示,自愿參與調查的患兒家長共有60名,“經(jīng)常閱讀”和“偶爾閱讀”推送消息的家長各占50.00%,53.33%的家長“總是仔細閱讀”每條推送消息,95.00%的家長向別的患兒家長推薦過本公眾號,83.33%的家長轉發(fā)過精彩圖文消息至自己微信朋友圈�；純杭议L自評微信公眾號對其幫助程度得分為(7.88±1.59)分,其主要影響因素為患兒疾病分型、患兒性別、患兒Barthel指數(shù)得分和患兒家長滿意度。結論:腦癱患兒家長對依托微信公眾號進行康復知識學習的需求較高,家長對微信公眾號的認可接受度與應用實效較好,并能獲得較多的專業(yè)指導與情感支持。因此,家庭康復指導微信公眾號可作為對腦癱患兒家長提供支持并促進其對患兒實施有效康復鍛煉的便攜健康指導工具。
[Abstract]:Objective: to explore the demand characteristics and influencing factors of family rehabilitation WeChat platform for the parents of children with cerebral palsy, so as to provide theoretical basis for the construction of the public number of family rehabilitation WeChat. With the help of WeChat public number, the author provided family rehabilitation guidance for the parents of children, and probed into the application effect of WeChat public number and its influence on parents. Methods: quantitative and qualitative studies were carried out in three stages. In the first stage, the parents of children with cerebral palsy who were interviewed by semi-structured hospitals were investigated qualitatively. On the basis of this, the questionnaire of rehabilitation guidance needs was compiled by the method of expert letter, and 121 parents of children were selected by objective sampling. In the second stage, based on the results of the preliminary needs survey and the rehabilitation guidelines for children with cerebral palsy, relevant books and hospital medical and nursing staff guidelines were used to apply for the WeChat public number and determine the contents of the rehabilitation guidance. With the help of hospital platform WeChat public number promotion, through WeChat group chat with parents to understand its dynamic needs. In the third stage, after three months of operation, a questionnaire was compiled on the basis of literature review and expert inquiry, and a questionnaire was sent to the concerned users with the help of the WeChat public number. The effect of public number use was evaluated by voluntary parents. Results: the results of the first stage study showed that the usage rate of family WeChat in children with cerebral palsy was 95.54, 32.14% of the parents had paid attention to the related rehabilitation WeChat public number, and 94.64% of the parents were willing to pay attention to the family rehabilitation guidance WeChat public number of children. The score of demand for rehabilitation guidance was 31.80 鹵7.60 and was influenced by education level. The frequency of reading WeChat public number was 2.57 鹵1.60 times per day, and the reading time was mainly before bedtime. Parents' rehabilitation needs are guided by massage, walking (standing), online communication, daily diet and speech training. The current status of the second phase of WeChat public number: 190 parents from 25 provinces around the country have paid attention to the WeChat public number, of which 138 have been used in Jiangxi Province. A total of 28 pictures and text messages were pushed by the public number for 3 months. A total of 1361 people clicked 3586 times. 879 people clicked on the WeChat Public number menu 1001 times, and the per capita number of clicks was 1.14 times. The more numerous sub-menus were WeChat group chat, massage instruction, and so on. Life ability test, walking (standing) training, language training. According to the results of the third phase of the survey, 60 parents volunteered to participate in the survey. "often read" and "occasionally read" push message 50.003% 53.33% of parents "always read carefully" every push message 95. 00% of parents recommended to other parents of their children, 83.33% of parents have forwarded wonderful pictures and texts. To your WeChat circle of friends. The score of public number of self-rated WeChat was 7.88 鹵1.59, and the main influencing factors were disease type, sex, Barthel index and parents' satisfaction. Conclusion: the parents of children with cerebral palsy have a higher demand for learning rehabilitation knowledge relying on the WeChat public number, and the parents have a better acceptance and application effect of the public number of WeChat, and can obtain more professional guidance and emotional support. Therefore, the public number of family rehabilitation guidance WeChat can be used as a portable health guidance tool to support the parents of children with cerebral palsy and promote their effective rehabilitation exercise.
【學位授予單位】：南昌大學
【學位級別】：碩士
【學位授予年份】：2017
【分類號】：R473.74

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