惡性腫瘤患兒母親支持性照護(hù)需求的質(zhì)性研究
[Abstract]:Objective: Through in-depth interviews with mothers of children with malignant tumors, to understand the care needs of mothers accompanying children during treatment, and to provide targeted support services for mothers of children, so as to reduce the physical and psychological burden of mothers of children with malignant tumors and improve the quality of life of children and families of children with malignant tumors. Methods: From January 2016 to October 2016 in a tertiary general hospital of Hebei Province, the mothers of children with malignant tumors were selected as the research objects, and the mothers of children who met the requirements were selected by purposeful sampling, and semi-structured interviews were conducted. Each interview lasted 30-40 minutes. After the interview, the mother listened to the tape recordings repeatedly and translated the tape recordings into words in time. Results: After the diagnosis of malignant tumors, the mother, as the main caregiver of the children, was confronted with tremendous physical and psychological pressure due to lack of awareness of the disease and uncertainty of the development of the disease. The knowledge and skills of managing children with malignant tumors; the long treatment cycle and easy recurrence of malignant tumors, so that many mothers of children with physical and psychological stress at the same time bear tremendous economic pressure, resulting in corresponding needs. Neglect emotional support and passive seeking behavior support 1 Topic 1: Initial seeking information support 1.1 Seek help from professional medical staff at the early stage of diagnosis, the vast majority of mothers for children with malignant tumors is a strange field, the mother of children with active medical staff to seek treatment of children with cancer, rehabilitation related knowledge, so that the mother of children with cancer. As a medical staff, it is very important to understand the needs of mothers and provide targeted guidance. 1.2 Seeking peer support from peers refers to the mutual help of people with similar diseases or physical conditions in life practice, social and emotional aspects. Mothers who share the same experiences offer help to each other and share information about treatment, which is the most effective form of communication. 1.3 Access to online cancer treatment is a multi-faceted collaborative process, and mothers of children hope. Doctors and nurses in hospitals have a heavy treatment task and are unable to take into account the needs of parents. They often only consult from various websites, but some mothers feel unreliable. 2 Theme 2: Intentional neglect of their emotional needs: personal physical and mental health needs 2.1 Hope to get. Mothers are forced to stop working to take care of their children. They are almost out of touch with society and lack of social roles. The painful experience of treatment is that many mothers feel hopeless and desperate. They especially want to be comforted and understood by others. 2.2 Most of the family support is provided by family members. With the help of material, emotional and information, parents are generally reluctant to tell others about the disease, so the emotional support of mothers comes mostly from the support of their husbands and other family members. 2.3 Neglect of professional psychological counseling and emotional support needs of children with malignant tumor treatment cycle is long, serious complications, suffering from Children's lives are threatened at any time, so that the mothers of accompanying children feel so depressed over a long period of time, especially need professional psychological and social workers to conduct psychological counseling, so that the mother's unhealthy mentality of the children can be adjusted, to create a good family atmosphere for the children, conducive to the recovery of the children's health, but the mother of the children never automatically seek it. Support system, make the body and mind in a state of extreme exhaustion.3 Theme 3: Passive seeking behavior support: social support needs 3.1 economic support needs when children were diagnosed with malignant tumors, due to the duration of the disease, the severity of the illness and the uncertainty of the outcome, children's families bear greater economic pressure, many families spent money. Save, even sell houses and land, high debt, can give birth to hope, these mothers bear physical and mental pressure at the same time bear a huge economic burden. 3.2 With the reform of the medical security system, China has initially constructed a multi-level medical security system, made a historic change in the medical security system. Many parents of newly diagnosed children do not understand the medical insurance policy. Because the treatment of children's tumors is concentrated in Beijing, Shanghai, Guangzhou and other big cities, the proportion of reimbursement in other places is relatively low, so we hope that the medical insurance policy can increase the proportion of reimbursement in other places. All kinds of unexpected situations make the cost escalate from time to time and the long-term treatment course brings tremendous physical and psychological pressure and financial burden to the mother of the child. 2 After the child was diagnosed with malignant tumor, the mother of the child from initial suspicion and fear to gradually accept the reality, the treatment process of malignant tumor makes many mothers suffer tremendous. For better treatment, the mother of the child actively seeks treatment information; provides emotional support for the mother of the child, alleviates psychological stress, relieves tension; uses all possible social support systems, reduces the burden of care for the mother of the child, for the patient. Children should create a family environment conducive to treatment and rehabilitation, and encourage their mothers to adopt positive coping styles to better adapt to life and complete the treatment of children.
【學(xué)位授予單位】:河北醫(yī)科大學(xué)
【學(xué)位級(jí)別】:碩士
【學(xué)位授予年份】:2017
【分類(lèi)號(hào)】:R473.73
【參考文獻(xiàn)】
相關(guān)期刊論文 前10條
1 王麗;王可暉;李霓;;創(chuàng)傷后應(yīng)激障礙的診斷與治療[J];現(xiàn)代養(yǎng)生;2015年16期
2 馮濤;王旭梅;吳心怡;竇長(zhǎng)虹;;實(shí)體瘤患兒家長(zhǎng)健康知識(shí)需求的調(diào)查[J];中華現(xiàn)代護(hù)理雜志;2015年16期
3 張金哲;;中國(guó)兒童惡性腫瘤防控體系戰(zhàn)略研究[J];臨床小兒外科雜志;2014年06期
4 李莉莉;;腫瘤患兒家屬的心理狀態(tài)及護(hù)理研究[J];中國(guó)腫瘤臨床與康復(fù);2013年10期
5 郭小璐;曹梅娟;;紐曼系統(tǒng)模式應(yīng)用進(jìn)展[J];護(hù)理學(xué)雜志;2012年13期
6 杜港;趙岳;夏利;李雅靜;;癌癥患兒父母心理健康狀況及需求的調(diào)查研究[J];護(hù)理研究;2010年10期
7 崔凱;蔡治英;;兒童腫瘤的發(fā)病規(guī)律及防治研究[J];醫(yī)學(xué)信息;2009年11期
8 李紅梅;王全義;楊黑女;李秋萍;;護(hù)士與癌癥患者對(duì)手術(shù)前健康知識(shí)需求認(rèn)知情況的調(diào)查分析[J];中華護(hù)理雜志;2008年05期
9 李楊;魏珉;;父母用應(yīng)對(duì)方式量表在我國(guó)慢性病患兒家長(zhǎng)中的適用性研究[J];中華護(hù)理雜志;2007年11期
10 楊智輝;王建平;;應(yīng)對(duì)策略和社會(huì)支持對(duì)癌癥病人創(chuàng)傷后應(yīng)激障礙癥狀的影響[J];中國(guó)心理衛(wèi)生雜志;2007年08期
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