【摘要】：背景:室間隔缺損發(fā)生率高,隨著醫(yī)療水平的不斷提高,患兒經(jīng)室間隔缺損修補(bǔ)術(shù)治療后可正常生活和工作,然而室缺患兒術(shù)后可存在不同程度的心理行為問題。盡管孩子已恢復(fù)健康,但是母親仍相信自已的孩子更容易患病、死亡可能性更高,這一現(xiàn)象稱為母親感知脆弱(Maternal Perceptions of Child Vulnerability,MPCV)。母親感知脆弱對患兒心理行為發(fā)展至關(guān)重要,而目前國內(nèi)外對先心病術(shù)后患兒母親感知脆弱的研究都很少,國內(nèi)也并未引進(jìn)感知脆弱測量量表。因此,很有必要引進(jìn)感知脆弱測量量表,進(jìn)而開展室缺術(shù)后患兒母親感知脆弱現(xiàn)狀調(diào)查及影響因素研究。目的:漢化中文版感知脆弱程度量表并檢驗(yàn)信效度;描述室間隔缺損修補(bǔ)術(shù)后患兒母親感知脆弱水平,探討室間隔缺損修補(bǔ)術(shù)后患兒母親感知脆弱的影響因素。方法:第一部分:遵循Brislin翻譯模型中的雙人翻譯-回譯法漢化量表;經(jīng)專家委員會及預(yù)試驗(yàn)調(diào)適條目;便利選取120例先心病患兒父母進(jìn)行調(diào)查,計(jì)算信效度。第二部分:便利選取在北京阜外醫(yī)院確診為室間隔缺損且行修補(bǔ)術(shù)后的患兒母親173名。采用中文版父母感知脆弱程度量表等對患兒母親感知脆弱的影響因素進(jìn)行測量。采用多元線性回歸分析來確定感知脆弱的影響因素。結(jié)果:第一部分:中文版父母感知脆弱程度量表的內(nèi)容效度指數(shù)(S-CVI)為0.90,各個(gè)條目的內(nèi)容效度指數(shù)(I-CVI)為0.8～1.0。采用探索性因子分析提取2個(gè)公因子,累積方差貢獻(xiàn)率為54.769%,各條目的因子負(fù)荷量為0.622～0.801。Cronbach's a系數(shù)為0.791,重測信度為 0.895(P0.01)。第二部分:患兒母親感知脆弱量表得分中位數(shù)為5分;20.8%患兒母親感知脆弱≥10分,感知脆弱處于高水平。感知脆弱總分及兩個(gè)維度的多元回歸分析結(jié)果顯示:感知脆弱總分的影響因素包括焦慮、是否為獨(dú)生子女、母親年齡;兩個(gè)維度的影響因素包括焦慮、家庭支持、患兒月齡、抑郁和右側(cè)切口。結(jié)論:第一部分:中文版父母感知脆弱程度量表具有良好的信度和效度,適用于評價(jià)先心病患兒父母的感知脆弱水平。第二部分:室缺修補(bǔ)術(shù)后患兒母親整體感知脆弱水平較低。焦慮、是否為獨(dú)生子女、母親年齡是感知脆弱的影響因素。
[Abstract]:Background: the incidence of ventricular septal defect (VSD) is high. With the improvement of medical treatment, children can live and work normally after VSD repair. Although the child has recovered, mothers still believe their children are more susceptible to illness and more likely to die, a phenomenon known as (Maternal Perceptions of Child Vulnerability,MPCV. It is very important for the development of children's psychological behavior that mothers' perceived vulnerability is very important. However, there are few researches on mothers' perceived vulnerability after congenital heart disease surgery at home and abroad, and no measurement scale of perceived vulnerability has been introduced in China. Therefore, it is necessary to introduce the perceptual vulnerability scale to investigate the current situation of mothers' perception of vulnerability after ventricular defect surgery and to study the influencing factors. Objective: to evaluate the reliability and validity of the Chinese version of perceived vulnerability scale, to describe the maternal perception vulnerability level of children after ventricular septal defect repair, and to explore the influencing factors of maternal perception vulnerability after ventricular septal defect repair. Methods: the first part: according to the Chinese translation scale of double translation in Brislin translation model, adjusting the items by expert committee and pre-test, the parents of 120 children with congenital heart disease were selected to investigate, and the reliability and validity were calculated. Part two: 173 mothers who were diagnosed as ventricular septal defect (VSD) and repaired at Fuwei Hospital in Beijing. The Chinese version of parental vulnerability scale was used to measure the influencing factors of infant mothers' perceived vulnerability. Multiple linear regression analysis was used to determine the influencing factors of perceived vulnerability. Results: in the first part, the content validity index (S-CVI) and the content validity index (I-CVI) of the Chinese version were 0.90 and 0.8 respectively. Two common factors were extracted by exploratory factor analysis, the cumulative variance contribution rate was 54.769, the load of each target factor was 0.791and the test-retest reliability was 0.895 (P0.01). The second part: the median score of mothers' perceived vulnerability scale was 5, 20.8% mothers' perceived vulnerability 鈮，

本文編號：2330712