本文選題：Duchenne型肌營(yíng)養(yǎng)不良癥　切入點(diǎn)：活動(dòng)　出處：《中國(guó)循證兒科雜志》2017年04期

【摘要】：目的確定中文版北極星移動(dòng)評(píng)價(jià)量表(NSAA)應(yīng)用在Duchenne型肌營(yíng)養(yǎng)不良癥(DMD)患兒的信度和效度。方法納入對(duì)象為2014年1月至2016年1月在復(fù)旦大學(xué)附屬兒科醫(yī)院康復(fù)科接受功能評(píng)估的DMD患兒,均經(jīng)基因檢測(cè)或肌肉活檢明確診斷,能獨(dú)立行走≥10 m,無(wú)嚴(yán)重認(rèn)知障礙。2名物理治療師同時(shí)對(duì)DMD患兒進(jìn)行測(cè)試,檢驗(yàn)不同測(cè)試者間的信度;同一評(píng)價(jià)者在第1次評(píng)價(jià)后3~7 d進(jìn)行第2次評(píng)價(jià),檢測(cè)重測(cè)信度;采用《國(guó)際功能、殘疾和健康分類》兒童和青少年版(ICF-CY)的類目編碼與NSAA的項(xiàng)目概念進(jìn)行關(guān)聯(lián),確定NSAA的內(nèi)容效度;通過(guò)分析NSAA的分值與6 min步行距離的相關(guān)性進(jìn)行關(guān)聯(lián)效度分析。結(jié)果 2個(gè)治療師對(duì)20名DMD男孩的不同測(cè)試結(jié)果間的信度分析顯示,NSAA原始分和線性分信度ICC分別為0.96和0.97;1名治療師前后3~7 d重測(cè)16名DMD男孩,NSAA的原始分和線性分具有很好的重測(cè)信度(ICC=0.96);NSAA17個(gè)項(xiàng)目共與8個(gè)ICF-CY編碼發(fā)生了20次關(guān)聯(lián),8個(gè)編碼都屬于d4(移動(dòng))下屬,表明NSAA的評(píng)價(jià)內(nèi)容主要聚焦于DMD患兒活動(dòng)能力中的移動(dòng)能力;143例DMD男孩的NSAA原始分和線性分與6min步行距離具有中等程度的相關(guān)性(r分別為0.40和0.38)。結(jié)論中文版NSAA量表無(wú)論是原始分還是線性分都具有良好的心理測(cè)量學(xué)特性,結(jié)合其他的評(píng)價(jià)指標(biāo),NSAA可以有效地評(píng)價(jià)中國(guó)DMD男孩的活動(dòng)能力。
[Abstract]:Objective to determine the reliability and validity of the Chinese version of Polaris moving Evaluation scale (NAA) in children with Duchenne muscular dystrophy. Methods from January 2014 to January 2016, the subjects were enrolled in the Department of Rehabilitation, Department of Pediatrics, affiliated to Fudan University. Functional evaluation of DMD children, All of them were diagnosed by gene test or muscle biopsy. They were able to walk independently more than 10 m. There were no severe cognitive impairment. 2 children with DMD were tested by physiotherapists at the same time to test the reliability of different test subjects. The same evaluator conducted the second evaluation 3 days after the first evaluation to test the test-retest reliability; the ICF-CY-category code was used to correlate the ICF-CYC with the NSAA project concept. To determine the content validity of NSAA; By analyzing the correlation between the score of NSAA and the walking distance of 6 min, the correlation validity analysis was carried out. Results the reliability analysis among the different test results of 20 DMD boys by two therapists showed that the original score and linear score ICC of NSAA were respectively. The original and linear scores of 16 DMD boys were retest 3 days before and after 0. 96 and 0. 97. The 17 items of NSAA had good retest reliability and 20 correlations with 8 ICF-CY codes, 8 of which belonged to d4 (mobile). The results showed that the evaluation of NSAA was mainly focused on the mobility of children with DMD. The NSAA original score and linear score of 143 DMD boys had a moderate correlation with the walking distance of 6min, and the r was 0.40 and 0.38, respectively. Conclusion the NSAA quantity in Chinese version is 0.40 and 0.38, respectively. The table has good psychometric characteristics, whether it is original score or linear score. Combined with other evaluation indicators, NSAA can effectively evaluate the activity ability of Chinese DMD boys.
【作者單位】： 復(fù)旦大學(xué)附屬兒科醫(yī)院康復(fù)中心;復(fù)旦大學(xué)附屬兒科醫(yī)院神經(jīng)科;
【分類號(hào)】：R746.2

【相似文獻(xiàn)】

相關(guān)期刊論文 前10條

1 劉欣;;臨沂市Duchenne型肌營(yíng)養(yǎng)不良癥患兒現(xiàn)狀及預(yù)防對(duì)策[J];山東醫(yī)學(xué)高等�？茖W(xué)校學(xué)報(bào);2007年04期

2 馮善偉;梁穎茵;操基清;宋新明;張成;;Duchenne型假肥大肌營(yíng)養(yǎng)不良癥患兒的主要生活事件發(fā)生規(guī)律[J];實(shí)用兒科臨床雜志;2012年24期

3 武盈玉;江澤菲;張桂芳;于清華;王富衛(wèi);單維新;呂素清;李冠群;;Duchenne型肌營(yíng)養(yǎng)不良84例報(bào)告[J];實(shí)用兒科雜志;1988年04期

4 程國(guó)尊,程敏,奚林,崔波;Duchenne肌營(yíng)養(yǎng)不良研究進(jìn)展[J];中國(guó)全科醫(yī)學(xué);2003年08期

5 王麗波;麻宏偉;王琳;田曉博;胡曼;任爽;譚迎花;;Duchenne肌營(yíng)養(yǎng)不良患兒的智力特點(diǎn)及與基因突變關(guān)系初步探討[J];中國(guó)當(dāng)代兒科雜志;2011年10期

6 李西華;吳燕;劉曉青;吳潔;趙蕾;魏倩;;一氧化氮和超氧化物歧化酶在Duchenne肌營(yíng)養(yǎng)不良患兒肌肉組織中的表達(dá)[J];實(shí)用兒科臨床雜志;2010年12期

7 崔敏嫻,周國(guó)漢,舒如姣,宋如梅,張菊英,楊繼昌;別嘌呤醇治療Duchenne型肌營(yíng)養(yǎng)不良癥[J];浙江醫(yī)學(xué);1984年03期

8 王麗波;麻宏偉;王琳;胡曼;任爽;譚迎花;;Duchenne肌營(yíng)養(yǎng)不良患兒血清心肌酶譜變化規(guī)律探討[J];中國(guó)實(shí)用兒科雜志;2011年11期

9 畢偉,黃仲蘭;女孩Duchenne肌營(yíng)養(yǎng)不良癥1個(gè)家系報(bào)告[J];實(shí)用兒科雜志;1990年01期

10 李西華;徐苓;劉曉青;趙蕾;吳燕;沈瑩;吳潔;顧學(xué)范;;不同年齡階段Duchenne型肌營(yíng)養(yǎng)不良患兒肌細(xì)胞膜上DGC關(guān)聯(lián)復(fù)合物蛋白的表達(dá)[J];臨床兒科雜志;2009年11期

相關(guān)會(huì)議論文 前1條

1 趙蕾;吳燕;沈瑛;崔雪娥;吳潔;宋小青;蔡嘉琳;王廉文;劉曉青;李西華;;對(duì)Duchenne肌營(yíng)養(yǎng)不良患兒肌組織微循環(huán)系統(tǒng)的研究[A];中華醫(yī)學(xué)會(huì)第十三次全國(guó)神經(jīng)病學(xué)學(xué)術(shù)會(huì)議論文匯編[C];2010年

相關(guān)碩士學(xué)位論文 前3條

1 王亞玉;Duchenne型假肥大肌營(yíng)養(yǎng)不良癥患兒及女性攜帶者臨床特點(diǎn)分析[D];安徽醫(yī)科大學(xué);2016年

2 董會(huì);Duchenne型肌營(yíng)養(yǎng)不良患兒語(yǔ)言功能評(píng)估及腦功能核磁影像學(xué)研究[D];新鄉(xiāng)醫(yī)學(xué)院;2016年

3 鄭月琳;強(qiáng)的松治療小兒Duchenne型肌營(yíng)養(yǎng)不良的臨床療效分析[D];浙江大學(xué);2013年

，

本文編號(hào)：1673975